Neurofibromatosis - Research - Academic Research and Clinical Centers - United States

United States

  • California:
    • House Ear Institute in Los Angeles is a CTF NFPC focussing on NF2 schwannoma and meningioma.
    • The NF/Ras Pathway Clinic at UCSF Medical Center in San Francisco. This is a CTF NFPC focussing on NF1 myeloid leukemia.
  • Florida:
    • The Wallace Lab and Muir Lab at the University of Florida in Gainesville, Florida focus on the molecular study of benign Schwann cell tumors and the development of new therapies for NF1.
    • The Neurofibromatosis Center at Miami Children's Hospital.
  • Illinois: The Neurofibromatosis Program at University of Chicago Medical Center.
  • Indiana: The Neurofibromatosis Clinic at Indiana University. This clinic has pioneered the use of Imatinib to treat neurofibromas.
  • Maryland: The Johns Hopkins Comprehensive Neurofibromatosis Center at Johns Hopkins Hospital
  • Massachusetts:
    • The Center for Neurofibromatosis and Allied Disorders at Harvard Medical School and Massachusetts General Hospital. This is a CTF NFPC focussing on NF2 schwannoma and meningioma.
    • Brigham and Women's Hospital at Harvard Medical School is a CTF NFPC focussing on NF1 malignant peripheral nerve sheath tumors.
    • The Center for Human Genetics at Boston University School of Medicine provides genetic testing laboratory service for Neurofibromatosis type I and Legius syndrome. Testing includes DNA sequencing and Multiplex ligation-dependent probe amplification.
  • Missouri: The Neurofibromatosis Center at St. Louis Children's Hospital. This is a CTF NFPC focussing on NF1 optic pathway glioma. They maintain a comprehensive list of current NF research studies.
  • New Jersey: The Neurofibromatosis Center of New Jersey and Institute of Genomic Medicine at University Hospital (Newark, New Jersey)
  • New York:
    • The Neurofibromatosis Center at North Shore-LIJ Health System
    • The Neurofibromatosis Center at NYU Langone Medical Center (see also Department of Otolaryngology).
    • The Comprehensive Neurofibromatosis Clinic at NewYork–Presbyterian Hospital.
  • Ohio: The Cincinnati Neurofibromatosis Center at Cincinnati Children's Hospital Medical Center. This is a CTF NFPC focusing on NF1 plexiform neurofibromas. The Ratner Lab focuses on interactions between glial cells and axons during nervous system development and how those interactions go awry to lead to NF1 and NF2 conditions.
  • Pennsylvania: The Neurofibromatosis Program at Children's Hospital of Philadelphia
  • Texas:
    • The Comprehensive Neurofibromatosis Clinic at University of Texas Southwestern Medical Center.
    • The Neurofibromatosis Clinic at Children's Medical Center (Dallas)

Read more about this topic:  Neurofibromatosis, Research, Academic Research and Clinical Centers

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